Mohamed, Che Rabiaah
(2011)
The 2nd International conference on prevention & management of
chronic conditions.
Other.
Pusat Pengajian Sains Kesihatan, Universiti Sains Malaysia.
Abstract
This study explored the educational needs of home-based stroke patients and family
caregivers in the Kelantan state located at the northern part of the Malaysia Peninsular. This
study used a qualitative approach guided by a theoretical framework, "Stroke Care Community
Model" developed for this research. This study was in two phases. Phase 1 involved semistructured
interviews with stroke patients, family caregivers and key members from health
professionals. Phase 1 established the educational activities currently received and needed by
patients and families. Phase 2 involved presenting the findings from Phase 1 to the previously
interviewed health professionals through focus groups and individual interviews with the aim
of establishing priorities and processes to develop education strategies for home-based stroke
patients and their families. The fmdings revealed that the provision of information and
education does not meet the needs of many patients and families. The educational needs are on
a wide range of topics on stroke and stroke care. The findings also revealed some needs are
religiously and culturally bound around prayer and traditional healthcare practice such as
traditional massage. Therefore, there is a need to take the knowledge of what makes a
difference to health outcomes of patients and families in a western context and work with this,
utilising what is important in the culture of people at a local level. The next step to progress
addressing educational needs requires a structured approach involving the formation of a multidisciplinary
stroke team that incorporates cultural and religious practice.
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