Rani, Nor Azila
(2018)
Association between ethnicity and thalassemia carrier status among secondary school students involved in thalassemia school screening programme in Pahang in 2016.
Masters thesis, Universiti Sains Malaysia.
Abstract
Background: Thalassemia remains a public health concern in Malaysia despite
screening programme has been conducted since 2004. Voluntary uptake towards
screening test still unsatisfactory as there was lack of public awareness about the
importance of screening activities. The public will not come forward for testing if
they did not perceive they are susceptible to be a carrier. Multi-ethnicity population
as in Pahang poses further challenges to overcome this situation. To our knowledge,
there is yet no analytical study done looking at the association between carrier status
with ethnicity in Malaysia.
Objective: This study aimed to describe the different types of thalassemia carrier and
to determine the association between ethnicity and thalassemia carrier status among
secondary school students in Pahang.
Methodology: A case control study was conducted from March 2018 till May 2018
involving ten districts in Pahang. The study used secondary data derived from
‘Rekod Saringan Talassemia Sekolah’ (KSK/ST/101/2016) form as the source of
data. Cases were students who were diagnosed thalassemia carrier and controls were
students who were not thalassemia carrier as documented in the database. Simple
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