A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia

Othman Tan, Suria Emilia (2013) A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia. Masters thesis, Universiti Sains Malaysia.

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Abstract

Thalassaemia is one of the commonest genetic blood disorders in the world. It is characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis, severe anaemia and chronic disease in children and adults. A child with thalassaemia requires lifelong regular blood transfusion in order to prolong survival and reduce extramedullary haematopoiesis. As any other chronic illness, thalassaemia does not only affect patient as an individual; it also involves variety of emotional and psychological burden to the parents and family as a whole. Unfortunately, there are very few studies done worldwide to assess parental heelth related quality of life (HRQOL) in transfusion dependant thalassaemia which is the reason why this study is important.

Item Type: Thesis (Masters)
Uncontrolled Keywords: Paediatrics
Subjects: R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Divisions: Kampus Kesihatan (Health Campus) > Pusat Pengajian Sains Perubatan (School of Medical Sciences) > Thesis
Zoom Profil Pakar (Expert Profile) > Suria Emilia Suhana Othman Tan (Advanced Medical & Dental Institute)
Depositing User: Mrs Rabiatul Adawiah Ab Manan
Date Deposited: 21 Nov 2017 07:43
Last Modified: 12 Apr 2019 05:26
URI: http://eprints.usm.my/id/eprint/37577

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