Jin Poi, Tan
(2015)
Comparison of two health related quality of life questionaires in Malay children with strabismus and their parent proxy.
Masters thesis, Universiti Sains Malaysia.
Abstract
Introduction: Strabismus is an eye condition associated with cosmetic,
functional and psychosocial circumstances. Evaluation of Health Related Quality of
Life (HRQoL) is increasingly recognized as an important factor in strabismus
management and a crucial tool for clinical research. However, there are not many
strabismus-specific HRQoL assessment tools, especially for children and to our
knowledge, no Malay translation for strabismus specific questionnaires. The English
versions of IXTQ and AS-20 questionnaires were translated into Malay language and
achieved linguistic validation in our study in a hope to apply the questionnaires into our
clinical practice. This study also compared the newly developed Malay version of IXTQ
and AS-20 HRQoL questionnaires in Malay children with strabismus and their parent
proxy.
Objective: To compare two health related quality of life (HRQoL)
questionnaires for functional and psychosocial aspects in Malay children with
strabismus and their parent proxy.
Methodology: The questionnaires were translated forward and backward before
they were administered to 30 Malay children with strabismus and their parents to
determine the internal consistency reliability. The test for Cronbach’s alpha was
performed. This was then followed by a comparative cross sectional study conducted in
Ophthalmology Clinic and Ward, Hospital Universiti Sains Malaysia from June 2012
until June 2014. A total of 57 Malay children aged 5 to 17 years and their parents were
recruited for this study. The children and their parents were then asked to complete the
translated Malay version of IXTQ and the AS-20 questionnaires. Children and their
parents were given simple verbal and written instructions by a trained personnel and
asked to base their responses on their experiences over the previous month.
Questionnaires consist of 5 point Likert type scale answer. The total mean scores,
functional subscale scores and psychosocial scores were calculated and compared
between both questionnaires.
Result: The evaluation of the internal consistency for all our newly translated
Malay version questionnaires except for Child IXTQ exceeded an alpha of 0.90. The
alpha value was 0.909 for Child AS-20, 0.912 for Proxy IXTQ, 0.948 for Proxy AS-20
and 0.651 for Child IXTQ. There was a significant difference noted in the total mean
scores and the functional subscale mean scores between both IXTQ and AS-20
questionnaires in the Malay children with strabismus (p < 0.001). There was no
significant difference between the psychosocial subscale mean scores of the two
questionnaires in the children (p = 0.122). In the comparison between the Proxy IXTQ
and AS-20, there was a significant difference noted in the total mean scores, the
functional subscale and the psychosocial subscale mean scores between both
questionnaires (p < 0.05). All the scores in AS-20 questionnaires are higher when
compared to the scores from all IXTQ.
Conclusion: The total mean score and functional subscale mean score were
significantly lower in the Malay version of IXTQ compared to the Malay version of AS-
20 in the Malay children with strabismus. There was no significant difference in the
psychosocial subscale mean score between the two questionnaires in the children. The
total mean score, functional and psychosocial subscale mean score were significantly
lower in the Malay version of IXTQ compared to the Malay version of AS-20
questionnaires in the parent of Malay children with strabismus.
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