Naqvi, Atta Abbas and Hassali, Mohamed Azmi and Aftab, Muhammad Tariq and Shyum Naqvi, Syed Baqir and Zehra, Fatima and Ahmad, Rizwan and Ahmad, Niyaz
(2017)
Development of Evidence-Based Disease Education
Literature for Pakistani Rheumatoid Arthritis Patients.
Diseases, 5 (4).
pp. 1-8.
ISSN 2079-9721
Abstract
Rheumatoid arthritis affects 0.5% to 1% of the population globally and is one of the most
common causes of disability. Patient education plays a key role in improving treatment outcomes.
The purpose of this study was to discuss the process involved in designing an evidence-based
disease education literature for rheumatoid arthritis patients of Pakistan in Urdu language with
culturally relevant illustrations. A study was conducted to develop disease education literature
using Delphi consensus, content validity, and patient feedback. A panel of experts comprised of
university professors and health care experts, including health practitioners and pharmacists as well
as a social scientist, was set up to assess the need. Eight patients were randomly selected and were
asked to give their feedback. Their feedback was incorporated in the development process. The entire
process was carried out in eight steps. A disease education literature for patients of rheumatoid
arthritis was developed and edited in the form of a booklet. The booklet contained evidence-based
information that must be provided to patients in both Urdu and English languages with culturally
relevant illustrations. The availability of such literature is significant, as it enables the patients to seek
knowledge at home at their convenience. This home-based knowledge support is as helpful as any
other means of medical care. The developed literature is planned to be used in further studies which
will evaluate its impact in improving knowledge of RA patients.
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